TheBird

Disabled Nonbinary Writer and Artist

People are suffering from several massively terrifying things all at once:

  1. gaslighting on a mass scale via massive misinformation campaigns, dearth of accurate data makes it VERY difficult to discern truth from fiction.

  2. Climate change worsening conditions for life (increasing likelihood of more pandemics atop our current one too)

  3. Pandemic is still ongoing, but acknowledging it means dealing with 1 and 2 and the reality of what that means. There is a lot of grief tied up in this as well.

  4. Trauma from living in a genocidal fascist state (white supremacist capitalist colonialist patriarchal state is pushing for full on genocide starting with our most vulnerable — disabled folks and/or trans folks and Jewish folks, which is who the Nazis in the 30s targeted first. Which by the way Nazi ideology arose after the Spanish flu swept through populations in a similarly terrifying way that Covid has been for us. Recall that the first book burnings was the Institute of Sex Research that cared for the health of trans people, and carried so much literature on trans people and queer folks. History may not repeat itself but it certainly does rhyme).

  5. Temptation to do whatever those in authority proclaim because it means less thought, less dealing with the heavy emotions of 1 through 4, and recognizing that they are vulnerable and could easily die and/or become disabled by the pandemic or some other trauma from the state. And most folks aren't ready to deal with this. They'd rather die by distraction, lies, and perpetuate gaslighting than face reality.

Why do you think so many went along with Nazism in the 30s? Why do you think people turned a blind eye to the horrors done to the Black community again and again? Why do you think people refused to acknowledge AIDS? Acknowledging reality means acknowledging the ways in which we may have been complicit. None of us can claim we are entirely separate from the systems that harm us, and thus by participating in them – even though most of us have no choice – we must face the fact that our participation upholds that horror. People want to view themselves as only good and so facing this morally complex situation often pushes people to not deal with it.

Yet, when disasters strike, people tend toward mutual aid and helping people. People have a tendency toward working together, but at the same time, there's a caveat to this rule. When the pandemic first started in 2020, people were roaring forward with mutual aid projects, assisting one another, and using pandemic mitigations.

But the pandemic isn't a one-time thing. It's not like a hurricane or a tornado, where we help one another and then rebuild. Those are a visible rebuilding – people can see progress. Thus it is often easier for people to aid what they see as visible progress toward goals.

Pandemics aren't visible like that. It's a long-term, erosion of life. It is hidden and hard to see. It isn't fully visible. There isn't a lot people can do other than pandemic mitigations, which are being increasingly villianized, and people want to be seen as part of an in-group. They don't want to be otherized in a time where being the 'other' will likely mean being harmed or killed. And a lot of people fail to deal with it, so they fall into 5 – temptation to give in and do what authority tells them.

Lack of ego death also plays into all of this. It is our ego that can blind us to the suffering of others and to connecting with others, where we may think of ourselves as special, where the calamity/situation/trauma can't and won't happen to us. Except, this mode of individualistic thinking is false. All of us are vulnerable and susceptible to calamities and bad things. Ultimately, we are all vulnerable people, and on a grand scale there is no meaningful difference between us.

This realization can lead people either toward apathy and despair, where they they may feel as if nothing matters and thus there is no point to trying, which leaves them susceptible to the temptation mentioned in point 5.

Or it can lead them to empathy and the realization that everything matters, and we can still care for each other. We can still thrive in a collective whole, and we don't have to face this alone.

Those of us who refuse to give in to the temptation in point 5? Who value people's lives over our own egos, over being part of any in-group, over whatever horrific justification folks are peddling these days, etc?

We see the truth of the reality we face. We yell and warn, and we refuse to fall in line with authority. We refuse to stop talking about reality, and thus we become the villain. We are forcing people to think and reflect.

So when faced with thinking and facing one's complicity in a horrific system, people lash out in anger. It's the easiest response.

In the Western world and the USA in particular:

Changing one's behaviors and the way things are currently done is incredibly hard and requires a lot of collective work. Acting in a collective way to save as many people as possible is hard. And there's far too many people who don't know how to do that.

The systems that we live in are built in a way to prevent collective work as much as possible. We've been socialized to NOT think collectively, to view it as bad, to view individualism as good — when in reality, humans can't survive for long unless we collectively work together. But at this point, many people have made this selfish-ego-centric individualism into their identity, and anything that threatens what they view as their identity? They lash out in anger and derision. They defend themselves, even though it's killing them to do so.

Because to admit the truth?

It requires them to upend their entire way of life, their view of themselves, and to hold themselves accountable. And far too many people are not ready to take that step. So they cling to an authority that takes away the choice and makes them feel good even if they know their actions cause harm.

This is what we are up against. Yes, it is awful and it sucks. Yes it is infuriating. Yes I've been the one derided and attacked because I continue to speak up about this too, and it's hard and exhausting to keep speaking up. To keep fighting for justice, accessibility, for that better world.

But one person at a time, we build that better world. It often takes a few people to start a cascade of realization, of discovering the truth, and of laying the foundation for others to join us in the fight.

It's why it's imperative for those within our movements to not fall for the temptation of point 5. Why it's crucial to continue to be accessible with pandemic mitigations, to normalize pandemic mitigations, to refuse the dealth-cult-narrative that mass death and disablement is okay, to refuse the individualistic-ego-centric view, to refuse the ideology that profits matter more than people, and to continue to stand up and speak our truth.

Because in the end, they may try to tear us down, break us up, but truth and justice burns still. We must continue to keep those fires lit within us and within each other. Collectively we are powerful, and we can illuminate for others the path away from the temptation of point 5. By building our collective power together and building networks of aid long-term among ourselves, we are showing through our actions another way. A better way, and we need to keep building. To not lose hope.

Mariame Kaba, a Black abolitionist organizer, once said that “Hope is a Discipline.” So let us enact the discipline of hope.

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

Long Covid

I wrote about the symptoms of Long Covid here: https://blanketfort.blog/thebird/ive-heard-folks-talking-about-xbb-1-5-kraken-variant-especially-with-some

What I notice the most about Long Covid for me is: * very bad fatigue, * joint pain, * brain fog (it's not as bad if I'm actually remembering to take my Testosterone on time), * intermittent numbness, * abdominal pain, * GI issues that keep morphing into all sorts of weird stuff, * migraines/headaches that hit once a week, * Exacerbates my current autoimmune illness that effects my right side and my ADHD * Eczema (developed that. ugh) * Asthma (got that from Covid too, didn't have it before) * Vision problems that worsened considerably (blurriness, double vision, needing prisms and binocular added to my glasses) * Unable to regulate my temperature well

There might be more but it's hard for me to keep track of what is LongCovid and what was my autoimmune illness I had prior. I didn't keep a very good log of symptoms prior to the pandemic, so my data on my prior illness is scanty at best. So comparing the too is difficult.

Since I'm trained in physics, I tend to prefer a larger data set of both illnesses to do a proper comparison, but without the data (and unable to go back in time), I can only estimate based on my journal entries from the before-times.

So for today and the future, I'm focusing on addressing the Long Covid and trying to find doctors willing to treat it and learn about new developments with me, but that's sadly rare. Especially since a lot of doctors have embraced eugenics by refusing to mask, and thus being vectors of spreading disease to their patients. That puts me at high risk of being infected and getting even sicker.

I don't want to be even sicker. If I get more sick, I won't be able to write anymore, and if I can't write, then that's like a living death for me.

I survive on writing.

Considering how utterly isolated I am due to my illnesses and my country going the route of eugenics by trying to force individuals into doing pandemic relief but at the same time doing mass abandonment by not supplying data or resources for us to even do risk assessments or learn how to do them.

How do I do a risk assessment then?

  1. I look up the data for Covid in my region. (My state is an asshole because they stopped reporting all Covid data to the CDC, so I can't even check transmission rates now. The only data I have left is the wastewater reporting on how much Covid particles are in our wastewater, which is a good indicator of surges but not the best for how quickly the variants are being transmitted.)
  2. I check if the place I need to go will have any Covid precautions such as masking, air filtration devices, a good flow of air — outdoors is best but if inside air filtration and open windows and fans help, and testing.
  3. I clean my masks to prepare them for the outing.
  4. I make sure I fit my mask on appropriately so there are no chance for leakage.
  5. I avoid eating and drinking or any activity where I must take off my mask. This can expose me.
  6. I limit my time in any indoors place to avoid exposure. So for an event that takes a very long time, I may forgo it entirely, especially if they fail to have enough pandemic mitigations.

It sucks to have to go through this and determine whether it is safe for me to go out at all, but it's the only way I can avoid getting ill again and making my health even worse. It's about survival for me.

And it's why USA's abandonment of us is so lethal. A lot of people can't do risk assessments because they never learned how or they're being fed misinformation about how bad the pandemic is currently. So then people act as if the pandemic is over, and when they get ill, they are shocked.

There's been a huge increase in Long Covid patients, in the millions now, but our healthcare system is not prepared. Many nurses, doctors, technicians, etc are being so swamped that some burn out and have to leave their jobs for their own sanity and health, which means less people available to provide care for the millions being mass disabled right now.

Our healthcare system is collapsing, and the current government is letting it happen. That's a form of eugenics, especially as it is marginalized populations being hardest hit due to the lack of resources available to us.

Eugenics is all about culling certain populations, and when a disease impacts certain populations more than others, the government has in the past and currently is doing today engaged in mass abandonment and withdrawal of resources and aid. They did this with syphilis, with AIDS, with Spanish Flu, with the horrifying experiments done to Black people – them being purposing infected for the government to study effects such as the Tuskagee experiments, and other diseases. Often aid isn't offered until the disease impacts the white cisgender men populations as much as us marginalized populations.

I think a lot of people don't fully understand what eugenics is or how it is practices, and that's a discussion that needs to happen.

We can't stop something if we don't first name what it is, discuss what is means, and then generate ideas on a more just and equitable and healthier alternative.

Our lives depend on stopping the current mass abandonment and eugenics policies our country is currently doing. We really need to band together collectively to care for each other and fight against that oppression.

We matter. Our lives matter. We deserve life and care. We're worth fighting for. Remember that.

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

People on cohost were discussing mindfulness and how mindful apps and corporations have ruined the term. Which got me thinking on why that is so and how it came to be.

I ended up writing the following:

Right Mindfulness and Appropriation

Mindfulness has been a crucial aspect of a lot of religions and spiritualities. It's part of the core of Buddhism and its neighboring religions. This stripping of the core elements of mindfulness was deliberately done, starting with Jon Kabat-Zinn who was a Buddhist teacher. Kabat-Zinn recognized the only way to get this practice into medicine was to strip away its spiritual components and focus only on the bare bones: “paying attention in a particular way; on purpose, in the present moment, and nonjudgmentally.”(1) Other people then created retreats and/or courses to teach this stripped down version more widely.

This art of paying attention in this particular way can be very beneficial, and studies do show that this style of mindfulness, when taught well, can aid people with their healing.

The problem is when when corporations wield mindfulness not as a way to help people, but as a way to control people.

And therein lies the difference. Corporations appropriating mindfulness, making all these “mindful apps,” stripped the essential core of mindfulness and remade it as a form of control and to make it marketable. This is why when corporations push employees to “meditate” or do other mindful activities, it can backfire instead of help. When the focus is on control, it fails to be a form of healing or liberatory moment.

(Note: the term 'right' is from sanskrit and pali words that denote 'wise,' 'wholesome,' 'skillful,' and is not an implication of this is the only right way to do it. The Eightfold path(2) and how to apply it's teachings is more of a guide on the path toward enlightenment, as how each person adapts, learns, and practices the path is often unique to their needs and experiences.)

Right Mindfulness requires giving up control. The four frames of reference for Right Mindfulness (as stated by Buddha):

  1. Mindfulness of body (kayasati).
  2. Mindfulness of feelings or sensations (vedanasati).
  3. Mindfulness of mind or mental processes (cittasati).
  4. Mindfulness of mental objects or qualities (dhammasati).

The practice of mindfulness cannot be separated from these frames of reference nor from its connection to the rest of the Eightfold path without it losing some of its most crucial and liberating aspects. Thus, when we are taught a stripped down version, we're often not receiving the full possible benefits because of the loss of these core elements.

So what the health industry and corporations peddle isn't necessarily mindfulness. It's an altered form focused on paying specific attention often in an effort to control one's reactions, thoughts, and feelings. (DBT does teach more of the 'letting go' aspects than any other form of this 'paying attention' meditative exercises, but there is still that essence of 'controlling' one's state that still crept into its application. Part of that is Western Psychology can't be separated from its origin of control.)

Right mindfulness requires us to let go, to be aware of our body and its processes, our feelings or sensations, or mind and thoughts, or mental objects or qualities — to look at each and let them pass through oneself. The activities inherent in the practice of Right Mindfulness:

  • Mindfulness reminds us of what we are supposed to be doing. Our thoughts can often mask over reality or decenter us away from the actions we are actually performing. For example, daydreaming while doing chores. Mindfulness brings the mind back to the process of doing chores, to be fully present and aware in that moment of each aspect of the task. This full awareness aids us in completing the task well.

  • In mindfulness, we see things as they really are. Thoughts can often distort what we see, feel, hear, experience. So mindfulness strips away those distortions. This aspect of it is what corporations don't want us to learn, because then we were see them for what they really are: seeking control to use us in their profit making machine.

  • Mindfulness sees the true nature of phenomena. This essential aspect of the activity of mindfulness brings us to the root of the true nature of existence: imperfect, temporary, egoless. This awareness of the true nature of phenomena also followed from the prior activity, and it allows us to look past the distortions corporations peddle to us and to see their true nature – their power-hungry, profit-driven, and ego based exploitation of human, animal, and nature. To see this true nature can often lead people toward liberation from the corporation's hold on us.

For liberation and enlightenment to be realized, we must see the true nature of the situation we are in currently.

Often times the meditation taught by apps like Headspace isn't Right Mindfulness, but more of an exercise in awareness and interoception (awareness of one's body). These are still crucial skills to learn, and definitely can help us heal and better manage our health. However, the other aspects of mindfulness is often neglected, partly because it requires far more discipline and practice than what corporations allow their employees.

Right Mindfulness, when practiced in the correct frames of reference, will lead people into the other seven aspects of the Eightfold path because Right Mindfulness, when practiced with respect to its original intent, is entangled in the other aspects of the Eightfold path.

As Thich Nhat Han wrote in The Heart of Buddha's Teaching: “When Right Mindfulness is present, the Four Noble Truths and the other seven elements of the Eightfold Path are also present.”

One cannot practice one without the others also being present to some extent. That is something Corporations don't want to happen.

Why? Because the Eightfold path leads people to a higher awareness and understanding of themselves, their place in the world, and the world in general. That push toward enlightenment breaks the corporation's hold on our minds and makes us less easily controlled workers. Our enlightenment leads us toward liberation.

So mindfulness is stripped down and appropriated, so it can be a tool to keep workers calm, productive, and less likely to rise up.

Except, we don't have to keep it that way. We can take mindfulness back from the corporate toolbox. We can restore it to its roots, but that requires us to understand its roots, understand how we got to where we are now, and act upon that knowledge to realize our collective liberation.

#Buddhism #EightfoldPath #Mindfulness #Liberation #AntiCapitalist #Appropriation

  1. Kabat-Zinn: https://web.northeastern.edu/matthewnisbet/2017/05/24/the-mindfulness-movement-how-a-buddhist-practice-evolved-into-a-scientific-approach-to-life/

  2. Eightfold Path: https://www.learnreligions.com/the-fourth-noble-truth-450091

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

I wrote this on my TheBird@ni.hil.ist Mastodon (I'm located in Midwest, USA, so this reflects on that society):

Our society has a problem with grief.

For one, our society's institutions don't teach much about grief or how to support others through it or how to deal with grief in a healthy way.

Second, our society doesn't provide time for grief. People are barely given any leave for a death of a loved one, and there's no time given at all for grief that stems from other issues like: grief from discriminatory laws that harm us, grief from mass death and disablement, grief from people failing to treat disabled people as worthy of life, grief from my continuing loss of physical activities, etc.

Grief requires us to be present in the moment. It requires us to acknowledge our emotions. It requires us to seek the source of the grief and acknowledge its existence. It requires us to be kind to ourselves and allow space for the grief. It requires us to adjust our life to heal from the source of our grief. It requires us to act to address the harm that caused the grief.

All of these actions oriented around grief makes us more aware, more conscious of the actions done to us and what we do to others, and pushes us further down a path toward liberation.

Acknowledging, addressing, giving time for, and acting upon grief makes us Less productive for the capitalist machine. Because grief strips away the distortions that muddle our ability to see what we face.

Grief forces us to see the source of our grief. When we acknowledge the source of our grief, this gives us space to act and change/adapt as needed, so that we may find healing and/or find a way to alter the source so that it no longer causes harm and induces grief.

This is one way we can learn to recognize the harm capitalist has done through the fact it is a source of our complex sets of grief.

To recognize, to acknowledge, and address the source of our grief means dealing with the harm of oppression from the current capitalist colonialist white supremacist systems that harm us and cause upwellings of grief.

So it is crucial for us to gather collectively to recognize and acknowledge our shared grief over these myriad, harmful issues and oppressive institutions and actions.

Then we must collectively seek ways to act to address the source of our grief. To change it toward a healthier, more healing, more equitable, more just set of actions and ways of being. Which in turn alleviates the grief.

That's a part of liberation that I wish we would discuss more.

#Grief #Liberation

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

Copy of that petition text — I edited out my personal information related to my location for safety reasons.

The drop of mask mandates in healthcare settings alarm me as an immuno-compromised patient, LongCovid sufferer, and disabled resident. This petition is a demand to reinstate mask mandates and to push for improved air filtration in all healthcare facilities within Iowa (and within USA too). (I will use numbers as footnotes to link to studies at end of this petition).

We, the co-signed, reject this change in policy as it puts patients and staff at further risk for airborne illnesses, and has contributed to the rise in cases for numerous illnesses such as Covid, Flu, and RSV in children and adults. It also violates OSHA safety, which the National United Nurses has pushed to make masks required for OSHA safety across all healthcare facilities. (1,2)

The drop of masks put immunocompromised patients at risk for severe disease or death.(3) Many of us are being forced to decide if we can safely attend appointments or if we cancel and suffer in pain. The safety of all patients ought to matter, but dropping mask mandates signal that us high-risk do not matter. This further isolates us, increases risks of worse health outcomes, and makes healthcare increasingly inaccessible. This is unethical, immoral, and harmful policy.

Masks are similar to hand-washing, where both lower viral and bacteria load. Numerous airborne diseases exist, including the Covid variants that impact multiple body's systems.(4) Masks protect against Flu and RSV. They also protect healthcare workers, as it's a basic OSHA protection that ought to be met.(5)

We Demand:

  1. Mask mandates be reinstated in all healthcare facilities for patients and staff.
  2. Use of N95 and other fitted masks as well as education on how to properly fit a mask for patients and staff.(6)
  3. All healthcare facilities invest in upgraded air filtration; this can include portable air filters that can be wheeled into exam rooms for lowering viral loads during appointments and procedures.(7)

I am going to go through each claim for why masks were dropped, and I will include the actual science that refutes each.

“We need to learn to live with Covid.”

Rebuttal: The verb 'learning' implies knowledge gained and acted upon. Going back to 2019 behaviors and failing to create a safe space for most vulnerable patients is not 'learning' but is 'ignoring,' which is unethical and unjust. To truly learn requires acting on knowledge that Covid is airborne,(8) is a neuro-vascular disease,(9) and we must decrease the viral load in the air with masks and upgraded air filtration (systems or portable devices).(10)

Vaccines do not stop transmission.(11) Masks not only protect patients but also health workers. With low staffing due to many workers being ill from LongCovid and Covid complications, we cannot afford to put patients and healthcare professionals at further risk. Pandemic mitigations must include equal and equitable access and use of ALL tools: N95 masks or better, Air filtration devices or upgraded HVAC systems, accurate data reporting of covid cases, and updated regularly vaccines.(12)

“Some people read lips.”

Rebuttal: Masks with transparent window by mouth with a good seal exist and been tested by experts to have little fog.(13) These are safer than surgical masks. There is also other accommodations that can be used to assist with people hard of hearing or deaf, which should be freely offered.

“We rent the building.”

Rebuttal: Portable HEPA filters can be placed in waiting rooms in corners or wheeled into rooms for high risk patients. Corsi-Rosenthal boxes have been certified as safe by US government and independent agencies and is relatively cheap to make.(7) Designs include mounting on wall, hanging from ceiling, or placing in corners.

“We have vaccines.”

Rebuttal: Vaccines help lessen severity but do not stop transmission. Science has proven many times – that vaccines are not enough.(14) Without using our other pandemic mitigation tools, the virus continues to mutate faster and evade immunity quicker than we can make vaccines.(15) Herd immunity doesn't seem to exist with Covid per the science;(16) multiple infections increase likelihood Endocrine and Autoimmune diseases,(17) heart attacks and Cardiovascular diseases,(18) strokes,(19) PANS in children,(20) neurological disorders,(21) diabetes in children,(22) and LongCovid in all ages.(23)

By not decreasing viral load, the virus mutates faster, and new variants often evade immunity and render vaccines less useful.(24) We must decrease viral load for vaccines to be and continue to be useful, thus masks and air filtration is essential and the only ethical, moral, and just response.

If healthcare is to do no harm, then we must utilize ALL our tools. By doing so, we not only decrease viral load for Covid but also other airborne diseases. Just as handwashing cleanses our hands from disease, so too can masks and air filtration clean our air.

Thank you for reading.

(1) Rise in Cases: People's CDC Covid Weather Reports https://peoplescdc.org/weatherreports/ AND Covid, Flu, and RSV rise in Cases in Children https://www.washingtonpost.com/health/2022/06/13/covid-flu-rsv-viruses/

(2) National United Nurses Petition https://docs.google.com/document/d/12ZxbYTr5GSOHZ64xbYyhMN-A9GDkaYEETwVtBUMJyd4/mobilebasic

(3) Risk of Death: Increase Risk of Death in Immunocompromised Patients https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(21)00299-6/fulltext

(4) Impacts Multiple Bodily Systems: Study on Full Symptom List for LongCovid https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(21)00299-6/fulltext

(5) OSHA Protections: Nurses and other Health Professional Access to Protective Equipment Study https://www.nationalnursesunited.org/nnu-covid-survey-8 AND OSHA Respiratory Protection Standards https://www.osha.gov/respiratory-protection/standards

(6) Mask Efficiencies and Fit Testing: Analysis on Best Masks to Wear https://www.axios.com/2022/01/11/n95-mask-protection-covid
AND Study on Efficiency of N95 Masks https://www.pnas.org/content/118/49/e2110117118 AND Fit-Tested Masks Study https://academic.oup.com/jid/article/226/2/199/6582941?login=false

(7) Air Filtration and Clean Air: Polluted Air Increases Risks of Severe Covid Illness https://www.medrxiv.org/content/10.1101/2022.11.16.22282100v1

(8) Airborne: Fit-tested Masks Protect Against Airborne Covid Disease AND List of Studies Proving Covid is Airborne https://academic.oup.com/jid/article/226/2/199/6582941?login=false AND https://cleanaircrew.org/covid-is-airborne/

(9) Neuro-vascular: Neurobiology Analysis of Covid19 and LongCovid https://www.cell.com/neuron/fulltext/S0896-6273(22)00910-2?s=09 AND Comprehensive Review of Immune Responses and Exhaustion in Covid19 https://biosignaling.biomedcentral.com/articles/10.1186/s12964-022-00856-w AND Covid and Increase in Microvascular Diseases https://www.nejm.org/doi/full/10.1056/NEJMc2033369 AND Covid and the Heart https://publichealth.jhu.edu/2022/covid-and-the-heart-it-spares-no-one

(10) Viral Load in Air Decreased by Air Filtration: Reducing SARS-CoV-2 in Shared Indoor Air https://jamanetwork.com/journals/jama/fullarticle/2793289 AND Air Ventilation and Filtration Reduces Risk of Covid https://theconversation.com/ventilation-reduces-the-risk-of-covid-so-why-are-we-still-ignoring-it-194820

(11) Vaccines don't stop Transmission: Multiple early factors anticipate post-acute Covid19 https://www.cell.com/cell/fulltext/S0092-8674(22)00072-1 AND Study of Breakthrough Covid Disease in Vaccinated Patients https://www.nature.com/articles/s41591-022-01840-0

(12) Protection Layers: Pandemic Swiss Cheese Layers of Protection Model https://www.nytimes.com/2020/12/05/health/coronavirus-swiss-cheese-infection-mackay.html AND People's CDC Layers of Protection Analysis https://peoplescdc.org/2022/09/12/layers-of-protection/ AND People's CDC See You Safer Toolkit https://peoplescdc.org/2022/11/17/safer-in-person-gatherings/

(13) Transparent mask designs: One Canopy Clear Mask Design https://www.onecanopy.com/ AND Transparent Mask 3DMask https://www.shoppwp.com/product/savewo-3dmask-smile/

(14) Vaccines Not Enough: T-Cell Exhaustion and Decreased Immunity https://www.nature.com/articles/s41392-022-00919-x AND T-Cell Exhaustion in Covid Patients https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7773371/ AND Covid Reinfections and Immunity Analysis https://thetyee.ca/Analysis/2022/11/07/COVID-Reinfections-And-Immunity/

(15) Viral Mutations, Variants: Variants Immune to EvuSheld Treatments https://www.covid19treatmentguidelines.nih.gov/therapies/statement-on-evusheld/ AND Neutralization against Omicron variants from mRNA Bivalent Booster https://www.nejm.org/doi/full/10.1056/NEJMc2214293

(16) Herd Immunity Doesn't Exist: Immunological Dysfunction Persists After 8 Months Study https://www.nature.com/articles/s41590-021-01113-x?s=09 AND Covid Was Never Mild Article With Studies Included https://jessicawildfire.substack.com/p/it-was-never-mild-and-we-dont-have AND Multiple Infections Increases Risks for Diseases in Multiple Bodily Systems https://www.reuters.com/business/healthcare-pharmaceuticals/repeat-covid-is-riskier-than-first-infection-study-finds-2022-11-10/ AND https://www.nature.com/articles/s41591-022-02051-3 AND Endemicity Is Not Victory: The Unmitigated Downside Risks of Widespread Covid Transmission https://www.mdpi.com/2673-8112/2/12/121

(17) Increase in Endocrine and Autoimmune Diseases: Covid19 Associated with Increased Risk In Respiratory and Nonrespiratory Diseases https://www.mja.com.au/journal/2023/218/1/associations-between-covid-19-and-hospitalisation-respiratory-and-non

(18) Heart Attacks and Cardiovascular Diseases Increase in Risk: Heart Attack Risks and Covid Study https://www.nature.com/articles/s41591-022-01689-3 AND Covid Linked with Abnormal Blood Clotting https://www.uclh.nhs.uk/news/long-covid-linked-increased-risk-abnormal-blood-clotting?s=09 AND Review of Cardiac Outcomes of Covid https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8638821/ AND Outcomes of Cardiac Arrest in Covid Patients Study https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8549129/

(19) Increase in Strokes: Analysis of Increased Stroke Risk https://pubmed.ncbi.nlm.nih.gov/33103610/

(20) Increase in PANS in children: Multisystem Inflammatory Syndrome in Children Study https://journals.lww.com/pccmjournal/Citation/2022/04000/Multisystem_Inflammatory_Syndrome_in_Children_.10.aspx

(21) Increase in Neurological disorders/Diseases: Increase in Neurological Diseases Study Review https://www.europeanreview.org/article/29093 AND Covid Patients Higher Risk of Neurodegenerative Disorders https://medicalxpress.com/news/2022-06-covid-positive-patients-higher-neurodegenerative.html

(22) Increase in Diabetes in Children: Increase in Diabetes Risk Study https://www.nature.com/articles/s42255-022-00678-7?s=09 AND Increase in Diabetes 1 in Children Study https://jamanetwork.com/journals/jamapediatrics/fullarticle/2788283

(23) Increase in LongCovid in all ages: LongCovid Study Published in Nature https://www.nature.com/articles/s41591-022-01840-0 AND Living with LongCovid Series https://www.theguardian.com/society/series/living-with-long-covid AND Patient Research Concerning LongCovid https://patientresearchcovid19.com/publication/ AND LongCovid After One Year Study https://www.valueinhealthjournal.com/article/S1098-3015(22)04743-X/fulltext AND LongCovid After 2 Years Study https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2798446 AND LongCovid in Adults and Children Study Review https://www.nature.com/articles/s41598-022-13495-5?s=09 AND Multi-system impact of LongCovid https://www.thelancet.com/journals/lanchi/article/PIIS2352-4642(22)00154-7/fulltext?s=09

(24) New Variants Evade Immunity: New Variants Evading Immunity At High Rates https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9747694/

Database for more studies: https://bit.ly/AidansCovidDatabase

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

I've been in a lot of pain and struggling to eat. I have been writing more of my stories. The ADHD medicine I have now helped a lot with that.

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

Mentions starvation and US politics: . .

Iowa Republicans apparently want disabled and low-income people to starve. https://www.rawstory.com/food-stamps/

I'm gluten and dairy-free because of food intolerances, and this bill would make it next to impossible to buy ingredients needed to make that food or even buy pre-made meals for when I have a flare-up and can't cook. This leaves me with very little to eat. It's a Starvation bill, and that's what I'm gonna call it from now on. It's just petty and evil. Give people food regardless, don't restrict it.

I want to write my representatives to urge them to fight this bill, but I need to find the energy to do that, and I've had some bad flare-ups lately. So bad that I've been sleeping for 12 or more hours and laying in bed in pain.

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

#Brainfog

Sometimes I sit at a desk or lie on the sofa or my bed, and my brain feels like the fog of war that video games use to hide the map. Until the area is uncovered through explorations, the dense fog obscures it from view. Except for brainfog, the fog creeps back over the explored areas, so everytime I make headway, the fog seeps over where I've been, until I've lost my way.

One of my board games, Tsuro, is a game where you lay down tiles and follow the path on the tiles. The goal is to stay on the board. However, there will come a time during the game, where no matter how you lay the tile, the path will take you off the board. There's a variant of the game called Tsuro of the Seas. They added dragons that move randomly depending on dice rolls, and the dragons eat up the tiles you lay. So you can end up trapped in endless loops.

I feel like those dragons eating up the paths we lay is a good symbolism for brainfog.

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

I had food poisoning this weekend. Though due to having C. Diff three times last year, there is some concern it could be that again. It's hard to say for sure as symptoms are near identical, but the tests for it can't be done until the 25th. Everything is backed up until then.

I think about how much our healthcare system is crumbling, yet people continue to go about as if we aren't in a triple pandemic, as if the world isn't being beset by climate change, as if our so-called “leaders” aren't throwing our lives away for short-term profits.

A term for this exists. Denial.

When the trauma looms and never ends, denial can often be our first response. To deny the awful thing is happening. To deny those that acknowledge the awful thing. What good does this serve? It serves to decrease cognitive dissonance, discomfort, and fear/terror. It's a rather unhealthy coping mechanism, especially as it distorts one's ability to assess risk.

I think that's where a lot of the population in America is. Trapped in denial and that trap is being fed by the gaslighting of elites and “leaders.”

Figuring out how to help people move past denial into acceptance and action is perhaps the most difficult task of all. I've managed to do it for a few people I know in-person (or have known online for years), but it took a lot of energy on my part.

And I don't have much energy to spare these days. I can barely upkeep the Covid Database and do basic self-care. Is this a sign of burnout? Or another LongCovid crash?

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)

I've heard folks talking about XBB 1.5 “Kraken” variant, especially with some confusion as to what its symptoms are since they differ a bit from the more common symptoms seen with Delta and earlier variants. (As a side note, the name “Kraken” was actually coined by T. Gregory, a epidemologist/immunologist that's on Twitter. He's been deriving new names for the lineages since XBB is a bit unwieldy to say).

XBB 1.5 originated in New York City, NY, USA. (Thanks USA.) It's now been exported to Europe and who knows else because America refuses to do pandemic mitigations.

[Note: America's CDC has been gaslighting the public here for years, and it's 'let-it-rip' approach is indeed eugenic-policies. (1) I do not advise relying on them for suggestions on how to avoid this variant; however, the scientific data that they include on their site – if you dig enough – is still valuable and show how deadly this disease can be, which contrasts immensely their harmful 'let-it-rip' messaging. Having said this, I will not be using them as a source in this discussion.]

XBB 1.5 is the most infectious and most immune evasive variant to appear yet. (2) It's a recombinant variant – meaning two Omicron lineages combined with XBB lineage to create this monstrous variant.(3) This evasion is so effective that even those with the newer bivalent booster offers only partial protection (4). No monoclonal antibody treatments work against it. (5) Paxlvoid does work to some degree; however, Molnupiravir has often lead to rapid accrual of mutations within the virus in immunocompromised patients, so is not recommended.(6) Covid is already known to “hide” in various parts of our body (7), and this variant is no different.

Symptoms for XBB 1.5 (Kraken) may include (8,9): * Muscle Aches * Body Aches * Scratchy/sore Throat * Fatigue * Back Pain (Lower most common) * Runny/stuffy Nose * Fever * Headache * Sore Eyes * Persistent Cough * Loss of Appetite * Chills or Night Sweats

The typical loss of smell and taste was less likely to happen with any lineage that derives from Omicron BA.2, which XBB 1.5 does (2,3,4,8,9). This doesn't mean it can't happen, only that it is more likely a change of taste and smell rather than full loss of it.(9)

Will XBB 1.5 result in LongCovid? Yes, it is possible. The likelihood of anyone contracting Long Covid increases exponentially the more times one is infected with any SARS-CoV-2 variant.(10)

Long Covid generally develops 4 to 6 months after initial infection. It is unknown how long Long Covid lasts as many suffers (myself included) have had symptoms for years. It's been labeled a chronic disease by several experts (10). Symptoms of Long Covid tend to hit several bodily systems. (10,11)

Important Note when reading this list: A sufferer of LongCovid rarely has all of these symptoms. They do tend to develop in clusters. I have a few in each category. If you find yourself having ANY of these symptoms and its been six months or more since you've had Covid, then please be seen by a doctor who acknowledges and treats LongCovid as a serious disease. Some of these symptoms (especially Cardiovascular ones) can be fatal if not treated.

[EDIT: Symptoms listed here are the most common for LongCovid but they are not all of the symptoms. See footnote 10 and 11 for the studies that dig into these symptoms and the less common ones I didn't recount here.]

General Symptoms (impacting multiple systems): * Fatigue * Post Exertional Malaise (often nicknamed the crash and happens after physical or mental exercising) * Elevated temperatures * Chills/Flushing * Weakness * Heat Intolerance * Low Temperature * Night Sweats * May develop Diabetes I (especially in children) * May develop Osteoporosis * Suicidal Ideation * Sexual Dysfunction * Menstrual Irregularities or Increase in Menstrual Pain * Increases likelihood of Thyroid and/or Cortisol Diseases

Neurological symptoms: * Brain Fog (Cognitive Dysfunction similar to a traumatic brain injury) * Headaches * Visual disturbances (Blurred vision, double vision) * Irritability * Sensitivity to Light * Sensitivity to Noise * Numbness or Tingling within various parts of body * Changes in Taste or Smell * Increases likelihood of Parkinson's or Alzheimer's

Cardiovascular symptoms: * Palpitations * Tachycardia * Pain/burning in chest * Visibly inflamed/bulging veins * Brachycardia * Fainting

Musculoskeletal Symptoms: * Muscle Pain or Soreness * Back Pain * Numbness in Muscles or Pins and Needles * Tightness of Chest * Joint Pain * Stiff Neck * Muscle Spasms * Bone Ache or Burning

Pulmonary Symptoms: * Asthma (may develop after Covid infection) * Shortness of Breath * Sleep Apnea (may develop after Covid infection) * Dry Cough * Difficulty Breathing (readings show normal O2 Level) * Cough with mucus * Sneezing * Rattling of breath

Gastrointestinal Symptoms: * Diarrhea * Loss of Appetite * Nausea * Abdominal Pain * Gastroesophageal reflux * Feeling full quickly when eating * Constipation * Hyperactive bowel sensations * Vomiting

Autoimmune Symptoms: * Heightened reaction to old allergies * New Allergies * New anaphylaxis reaction * Inflammation symptoms (overlaps with Dermatologic, Pulmonary, and Gastrointestinal symptoms)

Dermatologic symptoms: * Itchy Skin * Skin Rashes * Petechiae * Covid Toe (Hard to touch and a reddish/purplish color) * Peeling Skin

I share this list not to scare the souls out of people – though this list ought to scare everyone into doing basic pandemic mitigations like masking and air filtration/ventilation – but mostly to advise people on what to look out for, especially after they have had or thought they had Covid.

If you have any of the above symptoms but don't have proof of a positive Covid Test, then it is still likely you may have LongCovid (or at the very least it's partner in crime: ME/CFS), and should be tested by a doctor who is actually knowledgeable about both diseases. If you have proof of a positive test and have these symptoms, you are highly likely to have LongCovid, and the positive test will be helpful as proof.

Important note about LongCovid Treatments: if a doctor suggests graded exercise for LongCovid, fire that doctor immediately. Graded exercise therapy will result in a crash of even worse symptoms; it is particularly bad for LongCovid and ME/CFS patients, and newer research (10,11) recommend against it. Can some exercise help? Possibly but it is highly recommended to rest and carefully pace yourself to avoid overly stressing your body with too much physical and mental activities. Too much exercise will worsen symptoms significantly if not permanently depending on the person and severity of LongCovid and ME/CFS.

How can we avoid Covid?

The tools to avoid Covid still exist and we need to use them. We do not need to succumb to WHO and America's CDC gaslighting that the only way out is more infection to try to achieve “immunity,” which studies (10) show does not exist. All immunity gained from infection is lost within a few months, and newer variants often evade that immunity (2,3,4).

  1. Wear a N95 Mask or better everywhere. I personally use a FloMask with a pro-filter. Others swear by 3M elastrometrics or Envomask. For other reusuable masks, see Cambridge, Vogmask, AUS Air, Softseal, Happy Mask (for kids), Airgami (for kids), Enro Mask. (12)
  2. Invest and/or make air filtration (Corsi-Rosenthal Boxes can be made with some easy to buy materials or purchase HEPA filters) and push for all places to install these devices. (12)
  3. Keep tabs on the transmission data for your region. This will help you better prepare for when you must go out in public or attend events. (10 – see Covid Tracking tag).
  4. Visit the PeoplesCDC.org for its See You Safer Kit. It has even more tips and tricks!
  5. Test for Covid with RAT and/or PCR before and after events. This contact tracing is crucial to keep our communities safe.

I hope that helps folks! Feel free to ask me any questions.

FootNotes:

  1. https://upnight.com/2023/01/08/first-lets-kill-all-of-the-philosophers-covid-and-the-use-and-abuse-of-science/ And https://nancylwayne.wordpress.com/2023/01/09/the-broken-u-s-healthcare-system-long-covid-and-its-disproportionate-impact-on-women/ And https://thetyee.ca/Analysis/2022/07/04/Get-Ready-Forever-Plague/?s=09 And https://truthout.org/articles/abled-bodied-leftists-cannot-abandon-disabled-solidarity-to-move-on-from-covid/ And https://counterdisinformationproject.substack.com/p/the-pandata-file?s=09
  2. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9747694/
  3. https://amp.cnn.com/cnn/2023/01/03/health/covid-variant-xbb-explainer/index.html
  4. https://www.nejm.org/doi/full/10.1056/NEJMc2214293
  5. https://www.cell.com/cell/pdf/S0092-8674(22)01531-8.pdf
  6. https://www.medrxiv.org/content/10.1101/2022.12.21.22283811v1
  7. https://www.theguardian.com/society/2022/jun/28/are-pockets-of-covid-in-the-gut-causing-long-term-symptoms?CMP=Share_AndroidApp_Other And https://www.cell.com/med/fulltext/S2666-6340(22)00167-2
  8. https://www.yahoo.com/news/symptoms-covid-variant-xbb-doctors-080002661.html And https://www.cdc.gov/coronavirus/2019-ncov/symptoms-testing/symptoms.html
  9. https://www.nature.com/articles/s41467-022-34244-2
  10. https://bit.ly/AidansCovidDatabase (under tag LongCovid) And https://docs.google.com/document/d/15LHdOt-f6e7O5LWWAeNnh-zZ2YRW_EzrbSQKJBPnkvY/edit?usp=sharing
  11. https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(21)00299-6/fulltext And https://jamanetwork.com/journals/jamapediatrics/fullarticle/2788283
  12. https://peoplescdc.org And https://theconversation.com/ventilation-reduces-the-risk-of-covid-so-why-are-we-still-ignoring-it-194820 And https://cleanaircrew.org/

Written by Aidan Z. (Aaidanbird@disabled.social or TheBird@ni.hil.ist)